National HIV Testing Week 2021 recap

We’re proud that National HIV Testing Week (NHTW) 2021 was an outstanding success despite being a very different event to the one we are all used to.

This NHTW our partners across the sector continued to show passion and enthusiasm as they engaged their local populations, albeit virtually and largely through social media channels this year.

Our campaign highlights include:

  • NHTW’s most successful day ever with a record-breaking 8,200 HIV test kits requested on Monday 1 February. Popularity for HIV test kits was so high during this year’s event that Public Health England (PHE) funded an additional 10,000 kits, enabling even more people to know their HIV status.
  • Our NHTW messaging was amplified across mainstream and social media, and the major broadcasters by Channel 4 drama It’s A Sin which has continued to influence conversations about HIV as the series comes to a close on Friday.
  • More than 60 MPs testing for HIV at home, showing how easy it is to test, and engaging in important discussions based on the HIV Commission’s recommendations regarding the normalisation and increased access to testing.
  • Celebrities and influencers including Dr Ranj, Great British Bake Off star and podcaster Michael Chakraverty, Nigerian sexologist Amos Sanasi, influential trans writer Juno Dawson, and many, many more promoting the campaign through social channels via takeover events and video messages on the importance of HIV testing.

We know thanks to the success of this year’s campaign many of our stakeholders are interested to know the impact of testing kit uptake in their local area. PHE will be undertaking a review of the data over the next couple of months once most of the tests have been returned.

National HIV Testing Week evaluation results

Thank you to everyone who responded to our NHTW evaluation survey.

We received 71 responses, with more than 80% of respondents working in HIV or sexual health community organisations (41%), Sexual health clinics (32%) and Local Authorities (10%). Approximately one third of responses came from London (17%) and the South East (17%), and 14% from the North West region.

Headline results

NHTW continues to receive high levels of support from key stakeholders working in HIV prevention:

  • 94% of respondents will support NHTW in future
  • 97% agree NHTW is a valuable addition to their HIV prevention efforts

COVID-19

The impact of the COVID-19 pandemic was the biggest theme to emerge from the survey. There was a clear consensus that the campaign had managed to maintain its effectiveness despite the challenges of being a virtual event and without physical testing being able to take place this year.

It is felt there is need for a strong NHTW campaign in future, when conditions allow for the support of physical outreach and health promotion. There was a clear call for commissioners to support local HIV prevention efforts and show an interest in their work “so that more people in the community can be reached and get tested, leaving no one behind”.

Unsurprisingly the results of the survey show the clear differences between the virtual 2021 campaign and NHTW 2019:

  • 82% used the social media pack (NHTW 2019: 67%)
  • 58% ordered physical resources (NHTW 2019: 82%)
  • 32% delivered more tests than usual (NHTW 2019: 54%)

NHTW 2021 still had an impact on target communities

Despite the changes of circumstance to the delivery of this year’s campaign, stakeholders still reported high levels of perceived impact in their local communities:

  • 92% increased awareness of HIV testing amongst clients and the local community (equal to NHTW 2019)
  • 78% agree NHTW has increased their organisations capacity to impact their community/clients (NHTW 2019: 83%)
  • 32% raised the profile and support of HIV testing by engaging high-level public individuals (NHTW 2019: 26%)
  • Reactive HIV tests

We asked organisations who provide HIV testing if they had any reactive tests during the campaign.

  • Ten reactive tests were reported during NHTW 2021, more than NHTW 2019 (6).

Furthermore, all but one tests in 2019 were reported by community organisations, during NHTW 2021 the clear impact of the lack of physical HIV testing meant that all reactive tests were found in sexual health services (SHS). The increase in availability of online (or self-testing/self-sampling) via SHS appears to have also played a role in this change.

Thank you to everyone who took part in the evaluation survey and supported the 2021 campaign.

New Terrence Higgins Trust resources developed for and by trans, non-binary and gender diverse people

Trans and non-binary sexual health information from Terrence Higgins Trust

Little is known about the sexual health needs and knowledge of trans and non-binary people making it challenging to design effective health promotion and clinical services for them. In November 2019, Terrence Higgins Trust conducted a survey in sexual health and HIV knowledge, attitudes and experience which aimed to address this.

Survey demographics

The survey was disseminated online via target advertising and through the charity’s social media channels. The survey captured experiences through quantitative and qualitative data. A total of 223 responses were collected, of which 208 were suitable for analysis.

Respondents could select multiple answers to how they described their gender. Most used more than one term or described it in multiple ways:

  • 45% identified as non-binary
  • 31% trans man
  • 15% trans woman
  • 56% genderqueer/fluid/non-conforming
  • 16% other: trans masculine/masc, demigirl/boy, trans, neutrois, androgyne.

Nine individuals identified themselves as intersex. The age range of participants was 16 to 72. The majority of respondents described their ethnicity as White British (174).

Survey results

The survey identified a clear need to provide trans and non-binary people with sexual health information and raise awareness of the importance of testing for HIV and sexually transmitted infections (STIs):

  • Almost half of respondents (96) had anal/vaginal/frontal sex without a condom in the last six months; 35 had never tested for HIV and 13 had tested over two years ago.
  • Nearly half of all respondents (101) never tested for HIV.
  • 33 respondents had had an STI other than HIV (16%).

Findings and recommendations for creating sexual health resources for trans and non-binary people

The survey results produced clear themes and actions to address and inform a sexual health resource for the community.

Language
  • Should reflect thr range of gender identities and sexualities.
  • Must use representative non-gendered language.
Terminology
  • Must avoid gendered anatomical/medical vocabulary and phrases for body parts.
HIV transmission and treatment

A lack of knowledge was identified regarding routes (bodily fluids that might contain HIV), testing and HIV treatment.

  • Promotion of regular testing, even if people consider their sexual practices are safe, using a ‘best to know your status’ approach.
  • Ensure the community are aware of home testing options (self-sampling and self-testing kits) so that individuals know where to access test kits, their ease of use and reliability.
  • A need to promote the effectiveness of HIV treatment, and Treatment as Prevention (TasP).
HIV Prevention: PrEP/PEP

There was an overall lack of awareness of these prevention technologies. Resources need to:

  • Raise awareness of the difference between PrEP and PEP.
  • Provide information on where to obtain PrEP and PEP.
  • Provide the correct dosing requirements and methods of PrEP for trans individuals and individuals who have a vagina/front hole.
STIs

STI information should cover common STIs, how they are transmitted, their symptoms, and testing and treatment options.

Additional concerns identified in the research

Additional areas for consideration should include:

  • Sex, drugs and alcohol.
  • Consent, including sex and the law, and information and support for people to understand what appropriate sexual boundaries are and when a crime may have been committed against them so that they know how and where to report it.
  • Signposting to relevant agencies, including trans-specific clinical and therapeutic services.
Improving access to sexual health services

Respondents gave a number of recommendations to improve access to sexual health services (SHS). Practical measures include ensuring that diverse gender options are available on forms and systems; displaying LGBT+ posters and materials in clinics so people are aware they are in a safe space; and creating gender-neutral waiting rooms.

The other key recommendations focused on training for SHS colleagues. Areas of focus identified included:

  • Up-to-date and inclusive information regarding trans issues and LGBTI people.
  • Address the impact of assumptions of patients being heterosexual, cisgender and/or non-intersex.
  • Online training on trans issues available at gires.org.uk with modules for GPs etc.
  • Respectful use of pronouns.
Key topics for inclusion in sexual health resources

As well as standard sexual health information tailored towards trans people, respondents wanted to see information on key subjects including: trans-specific clinics; raising awareness of consent; sex drive, sexuality and transition; body image and feeling good about yourself; transition and relationships; hormone treatments; contraception, fertility and pregnancy; safer sex; and upper and lower surgery.

Other areas suggested included: mental health and sex; sex and dysphoria; prevention with trans genitalia; HIV treatment interactions with hormones; cervical screening; sexual health information for women who have sex with women.

New resources

Trans and non-binary people co-produced and feature in the new online resource and information leaflet. Ensuring the resource is trusted and represents the diversity within the trans community is key to its success.

Celebrating and reflecting the diversity within the trans community, it features eight trans and non-binary people from different cultural backgrounds with different body types and identities.
The new health information is directed to the needs of trans, non-binary and gender-diverse people and provides up-to-date HIV, sexual health and contraception information and advice. This includes the impact of hormones and surgery, considerations when taking HIV prevention pill PrEP and how to navigate happy, healthy sex.

Visit Terrence Higgins Trust’s new trans-specific sexual health pages.

Get ready for National HIV Testing Week

National HIV Testing Week starts on Monday 1 February 2021.

National HIV Testing Week is a campaign to promote regular testing among the most affected population groups in England. This helps to reduce the number of people living with undiagnosed HIV and those diagnosed late.

The campaign continues last year’s success and features celebrities and influencers promoting ‘Give HIV the finger: a finger-prick test is all it takes’.

We are inviting organisations to participate by running online and virtual campaign events and promoting HIV testing and prevention services with our support.

How to get involved

In light of the COVID-19 pandemic, we encourage you to promote testing at home to your local populations and community.

To find out more about how you can support this exciting event download and read our National HIV Testing Week 2021 campaign briefing [PDF].

Resources

Free resources to promote HIV testing this National HIV Testing Week are now available to order.

Log in to order leaflets, posters and merchandise to support your National HIV Testing Week activities.

NEW! All printed resources are also available to download as digitised PDFs for use in activities including online support groups and virtual outreach events.

Order your resources now.